All Stories

Aaron’s story – Our boy with LSD

Aaron Ng, age 4
Lysosomal Storage Disease
Malaysia

Rare Disease

A Father’s Letter to His Son

Chu Yat Long, age 7
Mucopolysaccharidoses (MPS) Type VI
Hong Kong

Rare Disease

Rare disease, to me, is not uncommon!

Then Dji Fong
Huntington Disease
Hong Kong

Rare Disease

A Father’s Wish

Leung Tsz Yuet, age 3
Costello Syndrome
Hong Kong

Rare Disease

Hope is Darmash

Darmash Subaramaniam, age 16 (deceased)
Mucopolysaccharidoses (MPS) Type II
Malaysia

Rare Disease

I Will Take Care Of You

Wong Hoi Yau, age 2 1/2
Prader Willi Syndrome
Hong Kong

Rare Disease

Our Journey Till Now

Sugirthana Karthick, age 8
Rett Syndrome
India

Rare Disease

The Fighter

Siti Safura binti Jaapar, age 33
Spinal Muscular Atrophy Type 2
Malaysia

Rare Disease

The Best Kind Of Support

Pauline Martinez, age 11
Gaucher Disease
Philippines

Rare Disease